Many of you have read my blogs about Chisum’s birth story and having an Amniotic Fluid Embolism (AFE), but here are the links to the story in four parts: {Part 1} Patience, {Part 2} Strength & Miracles, {Part 3} Meeting Chisum and {Part 4} NICU & Healing.
It is estimated that an amniotic fluid embolism (AFE) occurs 1 in 40,000 births. At least 40% percent of mothers and/or their babies will not survive. Of those that survive, many will suffer lifelong physical and emotional complications.
The AFE Foundation was founded in 2008 to support the unique needs of families affected or devastated by AFE, with the primary goal to spur clinical research into this poorly understood birth complication.
Prior to the establishment of the AFE Foundation, there was nowhere for families to turn for information or support. Similarly, there was limited information for clinicians. The decision to start the foundation was an easy one; the need was too great. Just weeks after its formation, families sought the support groups we created and the world’s top AFE experts joined their board. Months later, their website offered timely and accurate information and helpful guides to assist families through the challenging times after an AFE. Years later, research has begun, over 200 families have received direct support, and thousands of clinicians have benefited from their educational activities.
The AFE Foundation and survivors celebrate these accomplishments but know there is still a great deal more to be done.
How can you help? Know and share the facts!
Facts about AFE:
- is unpreventable and there is no cure
- is estimated to occur 1 in 40,000 births
- 40% of mothers will not survive
- affects women of any ethnicity and age and is independent of birth order or delivery method
Facts about the AFE Foundation:
- is a 501(c)(3) organization founded in 2008 by an AFE survivor
- is the ONLY organization in the world supporting families affected by AFE
- has the ONLY active patient registry in the world
Follow the AFE Foundation on Social Media:
Change your Social Media Profile and Cover Photos
- Click here to change your profile and cover photos to the AFE Awareness logo and banner.
- Post photos of you in your shirt on social media.
Fund our Mission
- Make a donation or ask friends and family to make a tribute gift in you or your loved one’s name.
- Create your own Personal Fundraising Page for AFE Awareness.
- Sign up and designate the AFE Foundation with Amazon Smile
Thanks for supporting me and this opportunity to help others like me. :)
No comments:
Post a Comment